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We're pleased to have some fantastic supporting organisations for National Transplant Week.
The long term aim of the African Caribbean Leukemia Trust is to educate and raise awareness about the importance of registering as potential bone marrow, blood and organ donors. The ACLT has helped increase the numbers of potential black and mixed race donors, helping to save many lives in the process. Find out more at www.aclt.org.
The Cystic Fibrosis Trust is the UK's only national charity dealing with all aspects of Cystic Fibrosis (CF), one of our most common, life-threatening, inherited diseases. The charity believes that everybody living with CF deserves the best possible quality of life with access to the best quality care and with a real hope for a better future.
They fund high quality research to understand CF better and to develop new and better treatments, set standards of CF care and review services to make sure they are meeting those standards, and they provide information and advice to people with CF and their families. Visit www.cftrust.org.uk or more information.
Run by donor families for donor families, the Donor Family Network offers a wide range of support – both in person and over the phone - and promotes organ and tissue donation. If you’d like to find out more or become a member of the Donor Family Network, visit www.donorfamilynetwork.co.uk.
Live Life Then Give Life works to improve education and awareness of organ donation and to fund projects that increase the number of successful transplants in the UK. The overall mission of the charity is to save and improve the lives of all those in need or receipt of organ and tissue transplants. For more information, see www.lltgl.org.uk.
The NBTA has been set up to address the under-representation of Black, Asian and Minority Ethnic (BAME) people on whole organ and bone marrow registers. It is an alliance, with membership drawn from organisations promoting awareness of donation in BAME and/or mixed parentage populations.
Every year, 180 people from these ethnic groups die waiting for a transplant because of a chronic shortage of suitable organs. People from a BAME background are three times more likely to need an organ transplant than the rest of the population, but fewer than 2% have recorded their wishes on the NHS Organ Donation Register. Around 90% of white Caucasian patients in need of a bone marrow transplant may find a match, while for BAME individuals the matching rate can be as low as 40%.
More about the NBTA can be found here www.nbta-uk.org.uk.
The National Kidney Federation is the national kidney patient charity in the United Kingdom. The Federation helps promote both the best renal medical practice and treatment, and the health of those suffering from Chronic Kidney Disease (CKD) or Established Renal Failure (ERF). The NKF also supports relatives and friends who care for kidney patients. For more information, visit www.kidney.org.uk.
Transplant Support Network provides help - usually over the telephone - to patients, family and carers of all organ transplant and mechanical implant recipients. As well as giving patients access to someone who has undergone the same transplantation process as them, it provides the same opportunity for their family and carers, who live through the many ups and downs before, during and after a transplant. Visit http://www.transplantsupportnetwork.org.uk for more information.
Transplant Sport UK aims to raise awareness of the need for organ donation in the UK and worldwide. Through organising sports and social events for transplant recipients, TSUK shows the benefits of organ donation and proves that you can lead a normal and active life again after transplantation. To find out more about TSUK and the British Transplant Games, visit www.transplantsport.org.uk.